Capitol Hill 2012 DISABILITY POLICY SEMINAR. The Arc UCP AAIDD AUCD NACDD SABE. April

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2012 DISABILITY POLICY SEMINAR April 23-25 Grand Hyatt Washington, DC www.

1 2012 DISABILITY POLICY SEMINAR April Grand Hyatt Washington, DC Capitol Hill The Arc UCP AAIDD AUCD NACDD SABE Sponsored By

2 The Grand Hyatt 1000 H St. Washington, DC LOBBY LEVEL Bellstand cure bar & bistro Atrium Entrance Front Desk Elevator to Meeting Space Starbucks Overlook Concierge Desk Stairwell Elevators To Guestrooms Stairway Escalators Retail ATM Retail Fit Club & Pool Metro Center Entrance Ramp LAGOON LEVEL (1B) Penn Quarter A Penn Quarter B Business Center Lagoon Escalators Elevator Restrooms Pay Phones Theatre Foyer Stairway Conference Theatre CONSTITUTION LEVEL (3B) Restrooms Coat Check Registration Desk Escalators Wilson Washington Boardroom Roosevelt Cabin John Constitution Foyer E D Arlington C Corridor B Corridor C B A Renwick Bulfinch Elevators Pay Phones Potomac Latrobe Burnham INDEPENDENCE LEVEL (5B) Cherry Blossom McPherson Square I H F G Corridor B A Franklin Square Lafayette Park Farragut Square Corridor A E D C B Elevator Escalators Restrooms Pay Phones Registration Desk

Sunday, April 22 9:00 a.m. - 3:30 p.m. THE ARC S BOARD OF DIRECTORS MEETING Farragut Square/Lafayette Park 2:00-4:00 p.m. NACDD BOARD OF DIRECTORS MEETING Cabin John/Arlington 4:00-8:00 p.m. REGISTRATION 4:00-5:30 p.

Annual Conference Mission Possible: Building Community Connections October 15-16, 2012 The Hilton, Los Angeles International Airport 5711 West Century Boulevard Los Angeles, California www.nacdd.

3 Sunday, April 22 9:00 a.m. - 3:30 p.m. THE ARC S BOARD OF DIRECTORS MEETING Farragut Square/Lafayette Park 2:00-4:00 p.m. NACDD BOARD OF DIRECTORS MEETING Cabin John/Arlington 4:00-8:00 p.m. REGISTRATION 4:00-5:30 p.m. AUCD TRAINEE SYMPOSIUM Constitution CD & E 4:30-5:30 p.m. NACDD PUBLIC POLICY BREIFING Cabin John/Arlington Advancing independence, productivity and integration Save the dates for 2012 NACDD Annual Conference Mission Possible: Building Community Connections October 15-16, 2012 The Hilton, Los Angeles International Airport 5711 West Century Boulevard Los Angeles, California 5:30-7:00 p.m. AUCD TRAINEE RECEPTION Constitution B monday, April 23 7:00 a.m. - 6:00 p.m. REGISTRATION 8:15-9:15 a.m. Connect With Your State Networking Breakfast 9:30-10:30 a.m. CONCURRENT SESSION Introduction to Legislative Advocacy 101 Constitution CD & E Speakers: Thomas P. Webb, Chairperson, Maryland Developmental Disabilities Council Erika Hagensen, Assistant Director for Policy, The Arc of North Carolina CHANGE THE WORLD IN ONE MINUTE The World I Want to Live in... No one knows better than you what would make the world a better place for those living with Cerebral Palsy. So who better to inspire others to give their expertise and skills? Tell the world -- write, make a video, and use the power of imagination to make a real change. World CP Day is dedicated to raising awareness around the world about Cerebral Palsy and those living with Cerebral Palsy. Coming September 4, 2012 worldcpday.com

4 CONCURRENT SESSION Voter Engagement: We ve Got the Power Independence BCD &E Moderator: Dee Dee Eberle, Director, Chapter Organizing and Advocacy, The Arc of the United States George Pillsbury, Founder and Executive Director, Nonprofit VOTE Meg Cooch, Director of Policy and Advocacy, Lutheran Services in America Disability Network 10:30-10:45 a.m. 10:45 a.m. 12:00 p.m. OPENING PLENARY - Progress in Community Integration Moderator: Mohan Mehra, President, The Arc Keynote Speaker & Leadership in Disability Policy Awardee: Thomas E. Perez, Assistant Attorney General for the Civil Rights Division, United States Department of Justice 12:00 1:30 p.m. LUNCH ON YOUR OWN 12:00 1:30 p.m. THE ARC S POLICY & POSITIONS COMMITTEE LUNCH MEETING Farragut Square 12:15 1:30 p.m. AUCD LEGISLATIVE COMMITTEE LUNCH MEETING Lafayette Park 1:30 p.m. 3:00 p.m. Hot Topics in 2012 Moderator: Sharon Gomez, President, American Association on Intellectual and Developmental Disabilities (AAIDD) Marty Ford, Director, Public Policy Office, The Arc Annie Acosta, Policy Advocate, The Arc Kim Musheno, Director of Legislative Affairs, Association of University Centers on Disabilities (AUCD) Ellen Jensby, Policy Analyst, AUCD Peggy Hathaway, Public Policy Manager, National Association of Councils on Developmental Disabilities (NACDD) TJ Sutcliffe, Policy Advocate, The Arc Julie Ward, Health Policy Director, The Arc Connie Garner, Executive Vice President for Policy, United Cerebral Palsy (UCP) Maureen Fitzgerald, Disability Rights Director, The Arc 3:00-3:15 p.m. REFRESHMENT 3:15 4:45 p.m. Defending the Lifeline: Medicaid, Social Security, and Community Living Moderator: Wanda Willis, President, NACDD Rodney Whitlock, Health Policy Director, Sen. Charles Grassley (R-IA) Ethel Zelenske, Director of Government Affairs, National Organization of Social Security Claimants Representatives Judy Solomon, Vice President for Health Policy, Center on Budget and Policy Priorities Kelly Whitener, Professional Staff Member, Senate Finance Committee 4:45-5:00 p.m. 5:00-5:30 p.m. News Briefs from the Administration Moderator: Lu Zeph, Co-Chair, AUCD, Legislative Affairs Committee Henry Claypool, Director, Office on Disability, Department of Health and Human Services Sharon Lewis, Commissioner, Administration on Developmental Disabilities, HHS Gary Blumenthal, Council Member, National Council on Disability 5:30-6:30 p.m. NETWORKING RECEPTION

TUESDAY, April 24 7:45 a.m. - 6:00 p.m. REGISTRATION 7:45-9:-00 a.m. Continental Breakfast 7:45 8:45 a.m. Meet & Greet Breakfast for Siblings Hosted by The Arc s National Sibling Council and the Sibling Leadership Network Lafayette Park 7:45 8:45 a.

5 TUESDAY, April 24 7:45 a.m. - 6:00 p.m. REGISTRATION 7:45-9:-00 a.m. Continental Breakfast 7:45 8:45 a.m. Meet & Greet Breakfast for Siblings Hosted by The Arc s National Sibling Council and the Sibling Leadership Network Lafayette Park 7:45 8:45 a.m. Meet & Greet Breakfast for Self Advocates Hosted by The National Council of Self Advocates of The Arc and Self- Advocates Becoming Empowered (SABE) Farragut Square 10:30 11:45 a.m. CONCURRENT SESSION Saving for the Future: ABLE Act Lafayette Park/Farragut Square Moderator: Steve Eidelman, Fellow, AAIDD John Ariale, Chief of Staff, Rep. Ander Crenshaw (R-FL) Will Hansen, Executive Director, Joint Economic Committee Steve Beck, Board Member, National Down Syndrome Society CONCURRENT SESSION Protecting the Affordable Care Act Independence BCD & E Moderator: Debra Dowds, Chair, Public Policy Committee, NACDD Peter Thomas, Co-Chair, CCD Health Task Force Sarah Dash, Senior Legislative Assistant, Sen. Jay Rockefeller (D-WV) Richard Hamburg, Deputy Director, Trust for America s Health 8:00 9:00 a.m. The Arc s State Presidents Meeting LaTrobe (Constitution Level) Concurrent Sessions Continued Next Page 8:00 9:00 a.m. The Arc s State Executive Directors Meeting Burnham (Constitution Level) 9:00 10:15 a.m. PLENARY - Education and Employment Policy Moderator: Tony Antosh, President, AUCD Register Now at Alexa Posny, Ph.D., Assistant Secretary for Special Education and Rehabilitative Services, Department of Education Andrew Imparato, Senior Counsel/Disability Policy Director, Senate Committee on Health, Education, Labor and Pensions (HELP) Brad Thomas, Senior Education Policy Advisor, House Committee on Education and the Workforce Laura Kaloi, Co-Chair, Consortium for Citizens with Disabilities (CCD) Education Task Force 10:15-10:30 a.m.

CONCURRENT SESSION Holding the Line on Disability Funding Moderator: Julie Fodor, President Elect, AUCD Mike Gentile, Professional Staff (Majority), Senate L-HHS-Ed Appropriations Subcommittee

m. LUNCHEON White House Update Moderator: Stephen Bennett, President and CEO, UCP Kareem Dale, Special Assistant to the President for Disability Policy, The White House 1:45-2:00 p.m. 2:00 3:00 p.m.

6 CONCURRENT SESSION Holding the Line on Disability Funding Moderator: Julie Fodor, President Elect, AUCD Mike Gentile, Professional Staff (Majority), Senate L-HHS-Ed Appropriations Subcommittee Kristin Smith, Deputy Chief of Staff, Rep. Dennis Rehberg (R-MT) Jennifer Dexter, Co-Chair, CCD Fiscal Policy Task Force National Convention & International Forum October 25-28, 2012 Washington, D.C. Achieving Inclusion Across the Globe 12:00 1:45 p.m. LUNCHEON White House Update Moderator: Stephen Bennett, President and CEO, UCP Kareem Dale, Special Assistant to the President for Disability Policy, The White House 1:45-2:00 p.m. 2:00 3:00 p.m. PLENARY - Shaping Our Messages: What Works Moderator: Peter Berns, Chief Executive Officer, The Arc of the United States Join us for a global gathering of the intellectual and developmental disability community. Register now at Michael Perry, Partner, Lake Research Partners 3:00-3:15 p.m. 3:15 4:00 p.m. PLENARY - Advocating in the New Budget Reality Moderator: Maxwell Barrows, Vice President, SABE Ellen Nissenbaum, Senior Vice President for Government Affairs, Center on Budget and Policy Priorities Leadership in Disability Policy Award Awardee: The Honorable Tom Harkin (D-IA), U.S. Senate Presenters: Maxwell Barrows and Nicole LeBlanc, SABE; George Jesien, AUCD Join over 600 disability leaders as we learn and share today s promising practices and innovations that shape the lives of people with disabilities and their families through research, policy, education, and service. December 2-5, 2012 Washington, DC

Capitol Hill Reception Dirksen Senate Office Building, Room G-50, C and First Street NE Entrance Presenters: Maxwell Barrows and Nicole LeBlanc, SABE Wednesday, April 25 ALL DAY - HILL VISIT DAY

7 4:15 5:00 p.m. State Caucuses Pennsylvania Caucus Lafayette Park Massachusetts Caucus Farragut Square Self Advocates Becoming Empowered 5:30-7:30 p.m. Capitol Hill Reception Dirksen Senate Office Building, Room G-50, C and First Street NE Entrance Presenters: Maxwell Barrows and Nicole LeBlanc, SABE Wednesday, April 25 ALL DAY - HILL VISIT DAY Participants meet with their Members of Congress and staff. Disability Policy Seminar staff will be available on both the House and Senate sides from 10:00 a.m. to 3:00 p.m. if you have questions during your Hill visits. The locations are: On the House Side Longworth Cafeteria, Longworth House Office Building (basement level) On the Senate Side American Grille, Hart Senate Office Building (on ground floor between the Hart and Dirksen Senate Office Buildings) ONLINE EVALUATIONS - WE NEED TO HEAR FROM YOU! Shortly after you return home you will be receiving an important follow up asking you to do two last things: 1) Complete your online Capitol Hill contact report. Meeting with your Members of Congress is the primary purpose of the Seminar. The online system organizes the information from each meeting so that the sponsoring organizations know what was discussed for follow up purposes. 2) Complete your online Seminar evaluation form to let us know what you think of the program and the accommodations. We review this information very carefully to make sure that the Seminar is the best it can be. August 30 September 2, 2012 Crowne Plaza St. Paul Riverfront Hotel St. Paul, Minnesota Questions or more information, please contact ACT at (651) , act@selfadvocacy.org or visit sabeconference2012.com Sabeconference2012.com

8 JOIN US FOR THE 2013 DISABILITY POLICY SEMINAR Save the Date! April 15-17, 2013 Presented by:

February Cultivating New Champions on. Capitol Hill. The Arc UCP AAIDD AUCD NACDD SABE. The Grand Hyatt 1000 H St.

February Cultivating New Champions on. Capitol Hill. The Arc UCP AAIDD AUCD NACDD SABE. The Grand Hyatt 1000 H St. February 14-16 Cultivating New Champions on Capitol Hill The Arc UCP AAIDD AUCD NACDD SABE The Grand Hyatt 1000 H St. Washington, DC LOBBY LEVEL cure bar & bistro Bellstand Atrium Entrance Front Desk Elevator