Introduction to AUCD Advocacy

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Introduction to AUCD Advocacy Cornerstone Government Affairs Mark Mioduski Amy Souders March 3, 2007

Role of Appropriations Committee Approve or modify the President s s Budget request for annual discretionary spending on a program-by by-program basis. There are 12 subcommittees, each with jurisdiction over certain Federal agencies, that enact 12 separate appropriations bills each year. Typically, 1-1 3 supplemental appropriations each year and continuing resolutions for days, weeks, or months.

Labor HHS Appropriations Subcommittees House David Obey, Wisconsin, Chairman Nita Lowey, New York Rosa DeLauro, Connecticut Jesse L. Jackson, Illinois Patrick J. Kennedy, Rhode Island Lucille Roybal-Allard, California Barbara Lee, California Tom Udall, New Mexico Michael Honda, California Betty McCollum, Minnesota Tim Ryan, Ohio Jim Walsh, New York, Ranking Ralph Regula,, Ohio John E. Peterson, Pennsylvania Dave Weldon, Florida Mike Simpson, Idaho Dennis Rehberg,, Montana Senate Tom Harkin, Iowa, Chairman Daniel Inouye, Hawaii Harry Reid, Nevada Herb Kohl, Wisconsin Patty Murray, Washington Mary Landrieu, Louisiana Richard Durbin, Illinois Jack Reed, Rhode Isla Arlen Specter, Pennsylvania, Ranking Thad Cochran, Mississippi Judd Gregg, New Hampshire Kay Bailey Hutchison, Texas Larry Craig, Idaho Ted Stevens, Alaska Richard Shelby, Alabama nd Frank Lautenberg, New Jersey

Typical Appropriations schedule 1st wk. Feb. Feb - May March 16 May - June June - July August Sept- Dec October 1 President submits budget to Congress Hearings Wish lists due to Subcommittees Sub & Full Committee markups Floor action Recess Conference Committee Send bill to President Fiscal year begins (bill completed or begin continuing resolutions)

LENDs Funding History Total funding # Lends Ave. award 2002 $18,748,097 35 $535,000 2003 18,831,420 35 538,000 2004 18,639,095 36 517,000 2005 18,767,233 35 536,000 2006 18,667,644 35 533,000 2007 18,667,644 35 533,000 2008 24,067,644 TBD TBD

FY 2007 Labor-HHS House Report Language for LENDs The Committee has included bill language identifiying $117,428,000 for the SPRANS set-aside. Within the total, the Committee urges HRSA to provide the highest possible funding level el to continue and enhance the Leadership Education in Neurodevelopmental and Related Disabilities (LENDs( LENDs) ) programs. These programs are designed to improve the health status on infants, children and adolescents with or at risk for neurodevelopmental and related disabilities and their families. This is accomplished through the interdisciplinary training of professionals for leadership roles in the provision of health and related care, continuing education, technical assistance, research and consultation. The programs focus on the special health care needs of children with a wide range of neurodevelopmental, metabolic and genetic disorders. Additional funding would help these programs initiate or expand their work in the area of Down Syndrome, autism, and genetics counseling.

FY 2008 LENDs Proposal MCH Block Grant AUCD supports an overall increase of $36,000,000 for the MCH Block Grant to bring it up to a total of $729,000,000 in FY 2008. The Committee has also provided $24,067,644 within the Special Projects of Regional and National Significance set-aside aside to enhance the capacity of existing LEND programs and expand the number of sites and professionals trained to diagnose, treat, and provide interventions to individuals with autism spectrum disorder authorized by the Combating Autism Act. This increase will help these programs initiate or expand their work in the area of interdisciplinary leadership training to meet the needs of children with autism spectrum disorder and related neurodevelopmental disabilities.

Office Visit Basics Goal is to establish a relationship Importance of LEND to the state Additional funding will be used to begin capacity building to provide interventions to individuals with autism spectrum disorder as authorized by the Combating Autism Act. LEND as a resource to the Congressional office Convey specific request for Congressional action, such as appropriations recruiting a champion. We want them to sign on to the AUCD dear colleague letter to the Labor-HHS appropriations subcommittee with the LEND request as soon as possible.

Top Line Talking Points -- the elevator pitch Develop the main pitch than can be delivered in 60 seconds: What you want Why you need it Who supports it Impact on the State/Congressional District

Office Visit Basics - Timeline Self introduction. Explain past contacts with the office, staff connections to state, etc. Offer business card. 1 minute overview of the school: location, enrollment, programs. 2 minute overview of local accomplishments. 10 minute presentation of issue papers Hand them each paper as you present it. 3 minutes for questions.

Office Visit Basics - Departure Thank them for the time. Offer to provide additional information, invite them for a tour of the program or do an event. Thank you note within a week (with follow-up information if requested) Report to AUCD staff on how it went and follow-up needed. Proactively send them articles, studies, information relating to their interests.