Arthritis Foundation

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Arthritis Foundation Arthritis Ambassador Briefing Dial In: 1-866-487-9460 Conference Code: # 931 709 2991 Materials available for download at http://www.arthritis.org/ambassador_assignment.php January 14, 2014 3PM Eastern

Agenda Welcome / Introduction / Goals of 2015 Laura Keivel, Manager of Grassroots Advocacy Federal Legislation and Caucus Update Anna Hyde, Director of Health Policy and Federal Affairs Welcome Back Congress Mike Splaine, Splaine Consulting State Legislation Update Mark Guimond, Director of State Government Relations Ambassador Activity Logistics Laura Keivel, Manager of Grassroots Advocacy Advocacy Summit Laura Keivel, Manager of Grassroots Advocacy Ambassador Commitment Form, Briefing Dates, and 2015 Platinum Ambassador Criteria Laura Keivel, Manager of Grassroots Advocacy Q&A

Welcome! Happy New Year! Thank you for being a part of the Ambassador program Goals for 2015 Sign up 16,000 new E-Advocates by the end of the year Grow the Congressional Arthritis Caucus to 128 members

2015 Federal Landscape Anna Hyde Director, Health Policy and Federal Affairs

Patients Access to Treatment Act Re-introduction likely in February AF is taking the lead on planning a briefing or press event for the re-introduction Goal is to have a bi-partisan bill in the Senate introduced at the same time Coalition for Accessible Treatment is currently meeting with Senate targets

Arthritis and the Military AF has a brand new ask this year: create a standalone arthritis research program at the Department of Defense, funded at $20 million This will be one of our 2 asks at the Summit AF is currently working on a White Paper on arthritis and the military, in addition to messaging materials for our advocates to use for their Members of Congress 6

Arthritis Caucus Update We began the 114 th Congress with 62 members of the Arthritis Caucus Our goal is to double that number by the end of the year We ve already added 1 member (Sen Coons, D-DE) Our first quarterly Arthritis Caucus newsletter will go out within the next month 7

Arthritis 101 Briefing Update Our December briefing was a great success 35 Hill offices represented, mostly high level staff Hill attendees and outside attendees gave us great feedback Video will be available soon 8

Welcome Back Congress Mike Splaine Splaine Consulting 9

State Legislation Update Mark Guimond Director of State Legislative Affairs

2015 Action in the States Iowa The Iowa Insurance Commissioner proposed a rule to allow for a 15 day prior authorization review period for non-urgent matters and 3 days for urgent matters.

Arthritis Foundation Position 15 days is too long for any prior authorization approval and 3 days can be devastating and even life-threatening to people with arthritis. 12

Advocates in Action Generated phone calls to the Assistant Insurance Commissioner Generated letters to the Assistant Insurance Commissioner Earned three op-eds on the subject Had direct testimony presented at the Commission s public hearing. 13

Iowa Outcome Due to the considerable advocacy against the provisions of the rule, it has been taken for further consideration. The state s legislature has taken notice of the issue and may seek to craft its own law rather than allowing the Insurance Commissioner to impose a rule. 14

State Legislation Update We need your personal stories! Let us know! Contact Mark Guimond at mguimond@arthritis.org

Welcome Back Congress Importance of the Caucus Importance of Staff Relationships Let s Get Started! 16

Activity Resources A guide with invitations, sample scripts, helpful tips, and the documents to take to the meeting are available on the website and will be sent out 17

A Few Reminders Polite persistence is important call again if you do not receive a response within 1-2 days If you are unable to meet in person, you may arrange for a 10-15 minute phone call If a phone call is not possible, please send the packet of materials to the Health Legislative Assistant Be sure to follow up and thank them! 18

Ambassador Activity Resources Check out the Ambassador Program: Current Assignment page for materials Materials will also be sent around with the call recording Print out the packet of materials and give it to your legislator s staff at the meeting or by e-mail if you cannot attend in person 19

Registration is Open! 2015 Advocacy Summit March 23-24 Doubletree Hotel Crystal City FREE registration! Visit arthritis.org/summit 20

2015 Advocacy Summit 2 day event activities begin at 11:00 AM on Monday, March 23 Panels on patient reviewers, state advocacy and expert advocacy trainings Rooms are $219 for single and double $229 for triple and quad 21

Reporting Center Please report your activity in the reporting center when you complete the activity www.arthritis.org/report 22

Ambassador Commitment Form The Ambassador Commitment form is a yearly document to confirm your participation in the Ambassador program The form will be available by the end of the month and is due Friday, February 27th 23

Platinum Ambassador Criteria Complete all 8 assignments plus 4 bonus and raise a minimum of $500 (get or give) Assignments must be reported into the Reporting Center to get credit 24

2015 Ambassador Briefing Dates Wednesday, March 11 3:00 PM Eastern Wednesday, April 15 3:00 PM Eastern Wednesday, May 6 3:00 PM Eastern Wednesday, July 8 3:00 PM Eastern Wednesday, September 9 3:00 PM Eastern Wednesday, November 11 3:00 PM Eastern 25

Questions? Contact Laura Keivel Manager of Grassroots Advocacy lkeivel@arthritis.org 202-887-2913 26

Thank You! We appreciate all of your support and dedication! The next Ambassador call is March 11, 2015 3:00 PM Eastern 27