Special Diabetes Program for Indians: FY 2017 and Beyond

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Special Diabetes Program for Indians: FY 2017 and Beyond Presented by: Caitrin Shuy, Director, Congressional Relations Michelle Castagne, Manager, Congressional Relations Rosemary Nelson, Tribal Leader at the Astariwi Band of Pit River Indians Karrie Joseph, Manager, Public Health Programs

Presentation Overview 1. Legislative outlook for the Special Diabetes Program for Indians 2. Overview of the Federal budget process 3. Determining SDPI funding amount 4. How you can be involved as Tribal leaders 5. Questions?

Legislative Outlook for SDPI SDPI Expires on September 30, 2017 Typical Legislative Vehicle not available will know more in early 2017, likely CHIP Opportunity to talk about long term/ funding increases Just had a support letter move through Congress 75 Senators 356 House Members 181 Democrats 175 Republicans

Legislative Outlook for SDPI SDPI has had the same level of funding since FY 2004 $150 million Renewed in 1-2 year increments lately Problem for Tribes, IHS and other to retain staff, plan programming and expand services

Federal Budget Overview Two Types of Federal Spending: Mandatory and Discretionary Discretionary: Annual Appropriations Defense; Environment; Veterans Affairs; Indian Health Service; BIA; BIE; Transportation; FDA most federal agencies Benefits: Can change from year to year (increase); ALWAYS passes Congress so stability is there Cons: Can change from year to year (decrease); Top-line discretionary spending getting cut compete with other priorities

Federal Budget Overview Mandatory: Spending that Congress legislates outside of the annual appropriations process -- Social Security; Medicare, CHIP; Medicaid; SDPI Benefits: Funding is more stable because authorization = appropriation Cons: Must pass legislation to exist as a program; funding level is rigid

Mandatory vs. Discretionary Federal Spending 2015

All Federal Spending 2015

The Federal Budget

What does this mean for SDPI? SDPI is currently on the mandatory side of the budget Should we consider moving to discretionary? If so, how much should we ask for? What are the risks with this? President s budget still a factor for SDPI what can Tribes do to take action?

Annual President s Budget Request February each year President issues annual Budget Request to Congress. This is the outline of how the agencies think that the annual discretionary funds should be spent each year Also includes policy / legislative proposals Does not typically involve mandatory funds which is funding that is automatic each year without Congressional approval IHS has historically included SDPI program continuation as part of the Budget Request

FY 2019?? Why NOW? Federal agencies may deal with 4 fiscal years at the same time. For Budget Years FY - 1 FY - 2 Jan Feb March April May Calendar Year June July August Execu=on of FY - 1 Enacted Budget Congressional Ac=on on FY - 2 President s Budget* Sept Oct Nov Dec Execu=on of FY - 2 Enacted* FY - 3 FY - 4 Formula=on of FY - 3 Budget Request Planning of FY - 4 Budget Request * Congressional activity varies each year and may impact the timing of an Enacted budget.

HHS/IHS Budget Formulation Phases KEY PLAYERS Area & National Planning IHS, Tribes, Urbans IHS Formulation HHS OMB Present to Congress Execution Approps SubComm/Full Comm Full House & Senate Conference Committee IHS, Tribes, Urbans

FY 2017 President s Budget Request for SDPI IHS Congressional Justification, page 222-23: Same level of funding, permanently Previous requests were for 3 year renewal Little (if any) Tribal consultation on proposal

Appropriations Basics Congress One Appropriations Committee in both the House and Senate Appropriations Committee develops annual discretionary appropriations 12 Annual Appropriations bills must pass Interior, Environment and Related Agencies! IHS Funding Labor, Health and Human Services, Education and Related Agencies! other Health programs

Congressional Appropriations Timeline Early February: President releases his budget to kick off Appropriations Late Winter/ Early Spring: Appropriations advocacy is key. Testify before appropriate committees; have meetings with staff/ deliver testimony Summer Floor action on many bills August RECESS Always invite your Member of Congress to your reservation! September / October Key work still getting done. Final deals being made November / December Must pass bills/ action taken

TRIBAL LEADERS can: Work with Areas to determine financial need for SDPI SDPI Renewal Roadmap Communicate Area SDPI funding needs to NIHB for Tribal Ask to Congress Coordinate a letter writing campaign to Congressional members Conduct Hill visits with Congressional members NOV DEC JAN FEB TLDC MEMBERS can: Attend Dec. 6 TLDC Virtual meeting, once approved Encourage Area SDPI sites to upload Local Impact Stories Host a visit by your Congressional Representative to SDPI programs in your Area Stay involved in your TLDC workgroup Attend Feb. 8-9 TLDC inperson meeting, once approved

TRIBAL LEADERS can: Work with Areas to determine financial need for SDPI Work with Area contacts (ADC, SDPI grantees, SDPI program participants) to gather data and stories that: Illustrate the burden of type 2 diabetes Articulate the amount of funding needed for diabetes treatment and prevention based on user population Who are you serving? Who are you NOT serving? What are the specific barriers to serving more people? Show which Tribes in your Area are NOT funded by SDPI and what additional funding would be needed to fund them Demonstrate positive clinical outcomes from current SDPI programs IHS Area Tribal Budget Formulation meetings or other IHS Tribal Consultations may provide opportunity for these discussions [usually held September November]

TRIBAL LEADERS can: Communicate Area SDPI funding needs to NIHB for Tribal Ask to Congress Work with Area Indian Health Boards, SDPI grantees, and Tribal leaders to establish consensus among the Tribes in your Area on how much funding is needed from SDPI Example: Area X estimates a need for a X% increase in SDPI because there are X #people unserved by the program Area X estimates that the Area will need a X% yearly increase due to medical inflation. Send Area-wide ask and justification to NIHB staff

TRIBAL LEADERS can: Coordinate a letter writing campaign to Congressional members Your voice can make a difference in the policymaking process! Send a (electronic) letter to your members of Congress signed by Tribal leadership Resources and templates available: State fact sheets Template letters Find your House Members Senators

TRIBAL LEADERS can: Conduct Hill visits with Congressional members Work with NIHB to schedule meetings with your Members in Washington DC or home District offices. NIHB can provide: Advocacy training Leave behind packets Follow-up with Members National SDPI Hill Day in Winter 2017

TRIBAL LEADERS can: Rosemary Nelson Astariwi Band of Pit River Indians, California Area Tribal Leader Ms. Nelson meeting with Congresswoman Jaime Herrera Beutler (R-WA) in February 2015 to discuss SDPI Reauthorization

Tribal Leaders Diabetes Committee Members In your role as a TLDC members, you cannot lobby Congress for SDPI funding

TLDC Members can: Attend TLDC virtual and in-person meetings As per the TLDC charter Recommend to the Director, IHS, a process for distributing SDPI funds and Provide the IHS and Tribal leadership with an ongoing forum to discuss all matters related to diabetes and the impact to other chronic diseases on AI/AN communities.

TLDC Members can: Encourage Area SDPI sites to upload Local Impact Stories A simple form can be filled by SDPI program staff, program participants and providers to tell their story: http://www.nihb.org/sdpi/ Local Impact Stories are used to educate decisionmakers on the life-saving impacts of the SDPI program

TLDC Members can: Host a visit by your Member of Congress to SDPI programs in your Area This is a great opportunity for SDPI programs to tell their story directly to members of Congress on why SDPI is saving lives and saving taxpayer dollars. The S.H.O.W. Toolkit and example site visits can be found here: http://www.nihb.org/sdpi/host.php

TLDC Members can: Stay involved in your TLDC workgroup The workgroups are the place for you to discuss ideas and house action items that enable the workgroup to stay on task and meet the mission of the TLDC and the workgroup charge as outlined in the strategic plan. Information on the workgroups can be found in the TLDC portal

Questions? Contact Info Caitrin McCarron Shuy, Director of Congressional Relations cshuy@nihb.org; 202-507-4085 Michelle Castagne, Congressional Relations Manager mcastagne@nihb.org; 202-507-4083 Karrie Joseph, Public Health Project Manager kjoseph@nihb.org; 202-507-4079