My heart is in two places: ontological security, emotions and the health of African refugee women in Tasmania.

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My heart is in two places: ontological security, emotions and the health of African refugee women in Tasmania. by Helen Elizabeth Hutchinson Bachelor of Arts (Honours) Master of Arts (Sociology) Submitted in fulfilment of the requirements for the Degree of Doctor of Philosophy School of Sociology and Social Work University of Tasmania December 2010

Thesis Abstract For historical reasons the Australian health system has been linked to immigration since the time of the first settlement and has retained its control of immigration health and its influence on settlement policy. Health professionals interpret emotional distress as a mental disorder, so that health provisions for refugees, who are perceived by Australian health professionals as necessarily suffering from traumatic experiences as a result of war, torture and terror, have focussed on mental health. While the health system has addressed many cultural issues considered by Western health authorities to have an effect on the health of refugee women such as problems of access, of communication, and the perceived insensitivity of health staff to cultural values and practices, other differences should also be taken into consideration. This research project uses a unique combination of qualitative research methods to trace the impact of forced separation from family members remaining in Africa on the health of refugee women from Sudan, Ethiopia and Sierra Leone. In contrast to other studies of transnational families, refugee families are identified as "stretched" in Massey's (1994) sense of retaining close relationships over distance, and also "stretched" in terms of the emotional strain of caring for family members who are in constant danger. "Stretched" also applies to the economic burdens which must be met to comply with family obligations and the requirements of the immigration and health systems before family members can be re-united with those in Australia. Participants in this research, who are often described by researchers as victims, and without agency, react to forced separation from their families by implementing strategies to bring their family members to Australia. Employment is a priority because they must also support their family members in another country, save money for sponsorship, medicals and transport, as well as support themselves in Australia. In order to find work they have to overcome barriers which include learning a foreign language, undergoing work training and gaining work experience. The emotional stress which results from the passage of time, the search for employment, the uncertainties of the family reunion process, and the availability of modern 2

technologies, which connect refugees to the lives of their family members on a daily basis, have embodied consequences for participants in the research. Western health systems interpret emotional pain as either of physical or mental origin, and apply appropriate medical treatments. However the embodied emotional pain experienced by the participants in this study is directly related to the circumstances of family separation and is only relieved when their family members are safe in Australia. Emotions are culturally created to respond to cultural values. Ontological insecurity is experienced as a result of ongoing social, emotional and physical stress due to unmet expectations. The body suffers from the stress created by the emotional determinants of health. Emotion, ontological insecurity and embodied health are connected through culture and social structure. Social ills require social healing. 3

Certificate of Originality This thesis contains no material which has been accepted for a degree or diploma by the University or any other institution. To the best of my knowledge and belief, the thesis contains no material previously published or written by another person except where due reference is made in the text of the thesis. Statement of Authority of Access This thesis may be made available for loan. Copying of any part of this thesis is prohibited for two years from the date this statement was signed: after that time limited copying is permitted in accordance with the Copyright Act 1968... ~.. ~......... l.a/(..j<;?t.~....... 4

Acknowledgments A thesis is a journey which benefits from many friends and travelling companions. The most important person in this journey is my guide, mentor and primary supervisor, Associate Professor Roberta Julian, who has had a significant role in my academic growth as well as being unceasingly optimistic. My special thanks also to Associate Professor Gary Easthope for his insightful and positive guidance. The women participants in this project deserve my gratitude for the way in which they shared their experiences and their time with a relative stranger. I hope the thesis reflects their lives with empathy and accuracy, and will lead to more understanding of their lives in general, and encourage change in policy and practice in particular. My grateful thanks are due also to those in the School of Sociology and Social Work, who supported, encouraged and guided me in this project, especially to Della Clarke and Lyn Devereaux who have always shown interest and for whom nothing has been too much bother. Thank you to my children who kept life relatively normal, balanced and secure, and my many close friends, especially Brian Marks (dec.). Finally, thank you for the special contribution and understanding of my partner, Neil. 5

Table of Contents Thesis Ah!; tract... *.. 2 Certificate of Originality... 4 Statement o..f Authority of Access o 4 Acknowledgments... 5 Table of Contents... 6 Table of Tables... 12 Table of Maps... 12 Table of Figures... 13 CHAPTER ONE -Introduction and chapter overviews... /4 CHAPTER ONE -Introduction and chapter overviews... 14 Geographical location and description of Tasmania... 14 Map 1 Tasmania... 15 Map 2 Tasmania is 240 kilometres south of the Australian mainland... 15 Map 3 Melbourne (Australia) is 11,500 kilometres from Nairobi (Kenya)... 15 Concepts and definitions... 16 Definition of 'refugee'... 16 Ontological security... 19 Sociology of en1otions... 21 A definition of culture... 22 What is health?... 23 What is mental health?... 24 Settlement and resettlement.... 26 The research problem... 27 Theoretical framework... 31 Chapter outline... 3 3 CHAPTER TWO- Australian immigration and African refugees... 36 Refugee populations... ~... 37 Table 1 People of concern to the UNHCR 2006... 37 Refugee flows and settlements in Africa... 38 Figure 1 Per capita incomes and refugee populations USCRI, 2006... 39 Table 2 Refugee intake and displacement: Sudan, Sierra Leone and Ethiopia. (UNHCR: 2003/2004)... 40 African perspectives... 41 Perceptions of African wo1nen... 43 Social networks... 46 Health and illness... 48 Remittances... 49 History of Australian immigration movements and nation building... 52 White Australia policy 1901, 1945, 1975... 53 6

Australia and refugee policy... 55 The history of intakes... 59 The construction of difference- "otherness" and racism... 62 Australia and refugee intake... 65 Table 3 Australia's quota for refugees 2007... 66 Australian government refugee settlement provisions... 67 Table 4 Refugee numbers in Tasmania 2001-2006... 68 Table 5 Top five countries of birth (Humanitarian entrants)... 68 Table 6 Top five countries of birth (Refugee entrants)... 68 Conclusion... 71 CHAPTER THREE- Health research and refugees... 73 Pre-arrival refugee health... 7 4 Pre-arrival health of refugee women... 75 Figure 2 Explanations of the pre-arrival health of refugees... 77 Post-migration health of refugees and immigrants... 78 Mental health... 80 The disputed status of mental illness... 81 Post traumatic stress disorder... 82 Other causes of depression... 83 Value judgments as basis for psychiatric diagnosis... 83 Embodied emotions... 84 Suffering as part of the human condition... 84 Treatment for mental illness... 86 The mental health of refugee women... 87 Barriers to health utilisation... 90 Settlement issues... 91 The in1portance of work... 92 English language skills... 94 Inappropriate health provisions... 95 Lack ofbi-cultural workers... 95 Need for bilingual workers and interpreters... 96 Cultural competency of health workers... 96 Cultural explanations of health differences... 97 Ethnicity... 98 Cultural isolation... 99 Different understandings of health and illness... 1 00 Social determinants of health... 1 01 Racism... 102 Post-migration health of immigrant and refugee women... 103 Sun1mary... 1 04 Figure 3 Post-migration explanations of migrant and refugee health... 104 Refugee women in Australia... 105 Physical health... 1 06 Mental health... 1 08 7

Social and emotional health... 1 09 Barriers to health utilisation... 111 Figure 4 Post-migration health of refugee women... 114 Su1nmary... 115 The health of refugee women in Tasmania... 115 Conclusion... 117 CHAPTER FOUR- Methodology and Research Methods... 120 Figure 5 Model of the research methodology and methods for this project..120 Epistemology... 121 Theoretical perspectives... 121 Pheno1nenology... 122 Phenomenological health research... 123 Feminis1n... 123 Methodology... 124 Qualitative research... 124 Ethnography... 125 Participatory Action Research... 127 Figure 6 Action research model... 128 Research methods... 129 In-depth unstructured interviews... 129 Participant observation... 130 Participatory Action Research... 131 The process of the research project... 131 Table 7 African refugee women in Tasmania 2002/2003... 132 Table 8 Women in this research project.... 133 Access to research pmiicipants... 133 Snowball sampling... 135 Process of setting up the interview... 13 6 Interview process... 136 Transcriptions... 13 7 PAR recruiting... 139 When is PAR, not PAR?... 140 PAR Process and implementation... 141 Methodological Issues raised in the literature... 142 Confidentiality... 142 Insider/Outsider debate... 142 Research ethics... 145 Informed consent... 146 Representativeness... 14 7 Analysis...,...,... 148 Table 9 Ways of saying "missing family"... 149 Table 10 Themes from the first interviews... 150 Rigor and Trustworthiness... 153 Limitations of the research methodology... 154 8

Reflections on working with refugee women... 156 Colonial perspectives... 156 Distractions... 15 8 Language... 159 Using interpreters... 160 Researcher stress... 161 PAR stress... 163 Trust.... 164 Reciprocity... 165 Leaving the field... 168 Conclusion... 169 CHAPTER FIVE- Ontological insecurity and settlement... 170 The refugee experience... 170 The decision to leave... 172 Learning about Australia... 173 Acculturation... 176 Housing and accon1modation... 177 Centrelink, banking and finance... 181 Education of children... 183 Australian culture and racism... 184 Racism and discri1nination... 185 Racis1n and isolation... 190 Planning... 191 Other issues... 193 The importance of learning English... 193 The importance of qualifications... 197 Prior learning and experience... 199 Self en1ployment... 200 Action... 202 Figure 7 The significance of work... 202 The pathways to work... 203 Finding work... 206 Employer exploitation... 209 Moving interstate... 212 The importance ofbeing able to drive... 213 The PAR learning to drive project... 215 Why help was needed... 215 Preparation... 217 Driving as acculturation... 219 Driving tests and instruction... 222 On the road... 223 Outcomes of the driving section of the PAR project:... 225 Stages of refugee resettlement... 226 Figure 8 The process of settlement..... 227 Conclusion... 228 9

CHAPTER SIX- Ontological insecurity and health... 230 Aspects of health on arrival... 230 Location and health... 231 Pre-arrival health history... 235 Responses to the Australian health system... 236 Diet and health... 242 Embodied distress... 247 Emotions, work and health... 251 Mental illness... 253 Trust and friendship... 254 The strength of "weak ties"... 256 Emotions, ontological security and culture... 259 Supporting family in Africa... 260 Need for emotional support... 262 "Mobile communities"... 263 Social connections... 265 The stress of sponsorship... 267 Table 11 Time taken to become a citizen (WK field notes)... 269 Table 12 Time taken from notification of interview to arrival in Tasmania.271 Pathways to immigration and citizenship... 271 "Stretched families" and "stretched emotions"... 273 Figure 9 A model of the health of refugee women... 277 Conclusion... 278 CHAPTER SEVEN- The health of refugee women in Tasmania... 280 Culture and health... 281 Separation from family in Africa... 283 Table 13 Finding a solution... 285 Table 14 Participants and short term solutions to isolation and loss of family.... 286 Health concerns... 286 Work and health... 287 Racism and visible difference... 288 Overview... 288 Emotions, ontological insecurity and health... 289 The biological basis of emotion... 291 A theory of emotion and ontological security... 292 Relating the biological and the social..... 293 Figure 10 The biological and social process through which emotion is created.... 294 Emotion and culture... 295 Establishing control... 296 The emotional determinants of health... 297 Conclusion... 298 10

CHAPTER EIGHT-Implicationsfor policy and research... 300 Settlement policy... 300 Family support... 303 Employment and work skills policy... 304 Figure 11 Model of accumulated stressors... 306 Health policy... 307 Everyday acculturation... 310 Ontological security, emotions and health... 310 Future social research... 311 Conclusion... 312 Appendices... 314 Appendix 1 Acronyms and abbreviations... 314 Appendix 2 Definitions of "refugee"... 315 Appendix 3 Health screening items for Australian immigrants... 320 Appendix 3 Health screening items for Australian immigrants... 321 Appendix 4 Re arrangement of interview text..... 322 Appendix 5 Information sheet... 323 Appendix 6 Nvivo analysis... 325 Appendix 7 Interpreters and interpreting... 326 Appendix 8 Australian mental health costs... 332 RE.FERENCES... 336 11