New Ambassador Orientation. Laura Keivel Manager, Grassroots Advocacy

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1 New Ambassador Orientation Laura Keivel Manager, Grassroots Advocacy

2 Arthritis Foundation Advocacy Advocacy and Access is part of the National Office based in Washington, DC New state advocacy initiatives and access issues Federal priorities and building a strong Congressional Arthritis Caucus

3 Ambassador Program Contact Laura Keivel, Grassroots Advocacy Manager Advocacy Leadership Team Member Please contact us anytime! or

4 Regional Advocacy Workgroup Mid Atlantic Region - West Mark Guimond mguimond@arthritis.org 202/ DE, MD, DC Mid Atlantic Region - East Claudia Stewart cstewart@arthritis.org 804/ or ext SC, NC, VA, FL, TN Southeast Region Ayana Charleston acharleston@arthritis.org 678/ AR, LA, MS, AL, GA South Central Region Pam Gill pgill@arthritis.org 214/ TX, OK, NM Heartland Region Michele Guadalupe mguadalupe@arthritis.org 312/ cell 773/ KS, NE, IA, MO, IL, IN New England Region Andrea Savinsky asavinsky@arthritis.org 860/ ME, NH, VT, MA, CT, RI Pacific Region Krystin Herr kherr@arthritis.org cell 916/ CA, NV, AZ, HI Northeast Region Michele Greco mgreco@arthritis.org 917/ NY, NJ, PA Great West Region Johanna Lindsay jlindsay@arthritis.org 206/ X105 WA, OR, ID, MT, WY, UT, CO, AK, CA Upper Midwest Lori Obluck lobluck@arthritis.org 414/ ND, SD, MN, WI Great Lakes Region Pam Fields pfields@arthritis.org 513/ X4053 MI, OH, PA, WV, KY

5 Mission of the Ambassador Program Arthritis Ambassadors are volunteers committed to taking part in the democratic process and serve as liaisons between the Arthritis Foundation and their Congressional District s Representative and state representatives. Each Ambassador s efforts are crucial to the success of the Arthritis Foundation. Each month, Ambassadors are asked to work with the Foundation s Advocacy and Access staff on special assignments to advance the Foundation's advocacy efforts and to share their story with important decision makers.

6 What is the Ambassador Program? Webinars every other month with an update, speakers, and a monthly activity Variety of tasks that build towards creating a relationship with your legislators Tasks can take less than 15 minutes Strong community of advocates Ambassadors are encouraged to attend the annual Advocacy Summit in Washington, DC

7 Why is Advocacy Scary?

8 Why would they listen to me? Why should they care? What could they possibly do for me? Advocacy is intimidating!

9 Advocacy is Not Scary! They have families too and some are affected by arthritis Legislators are people too often state legislators are part time and have careers Their job is to listen to you

10 Your Role in Advocacy is Important Your voice is important only you can tell your story and you know how arthritis impacts your life If we don t talk about arthritis with Congress, who will? Many other organizations work with Congress we need to be there YOU are the experts

11 Government 101

12 Who Remembers High School Government? 435 Members of Congress and 100 Senators You have 1 Member of Congress and 2 Senators Bills are introduced in the House and Senate and referred to committees Bills must make it through hearings and committee meetings Bills passed by the House and Senate are sent to the President for signature or veto

13 Terminology When communicating with your Members of Congress, be sure to use the correct titles Representatives are in the House of Representatives Senators are in the Senate All are Members of Congress

14 Find your Representative Go to In the Enter your ZIP code box add your 5 digit ZIP Code

15 What if you have more than one possible Representative? Visit the Postal Service website Enter your FULL address no P.O. Boxes! Use the ZIP +4 and enter it in at

16 How to Find Your Senators You have two Senators per state no matter where you live. Go to: /senators_cfm.cfm

17 Our Work

18 Arthritis Foundation Federal Issues H.R The Patient s Access to Treatments Act (PATA) Biologics are breakthrough treatments for people with chronic conditions such as RA Biologics are highly specialized and are expensive A number of health insurers have adopted a specialty tier pricing system for these drugs the average monthly co-pay can be from $500 to $5,000 PATA would limit patients cost-sharing requirements

19 What Can You Do? Ask your Representative to co-sponsor H.R Tell them how the high cost of medication affects people with arthritis Tell your story!

20 Research Program at the Department of Defense

21 Congressional Arthritis Caucus Arthritis Caucus Hill Briefings: Back Pain and Ankylosing Spondylitis Arthritis 101 Access to Care A quarterly newsletter to inform members of Congress on major issues Goal to increase the Caucus membership to 126

22 What Can You Do? Ask your members of Congress to join the Caucus All Caucus members joined because an Advocate asked them to!

23 H.R Ensuring Children s Access to Specialty Care Act Would help with student loans for pediatric rheumatologists Funding comes from Public Health Service Act

24 State Issues All states are different but we work on: Biosimilar substitution Formulary transparency Narrow provider networks Out-of-pocket medication costs Prior authorization Step therapy Not all issues are in all states! All legislatures have different session lengths

25 Advocacy Summit March 14-15, 2016 in Arlington, Virginia Speakers, workshops, and presentations to empower advocates on state and federal issues to inspire them to advocate all year long Kids Summit where kids learn how to advocate for themselves

26 Responsibilities of an Ambassador

27 Responsibilities of an Ambassador Commit to being a liaison between the Arthritis Foundation and your state and federal legislators Be actively engaged in the program by completing tasks, attending local Arthritis Foundation events, and recruiting more Arthritis Foundation Advocates Being an Ambassador requires dedication and commitment!

28 About the Ambassador Program Webinars every other month with an update, speakers, and a monthly activity Variety of tasks that build towards creating a relationship with your legislators Tasks can take less than 15 minutes Strong community of advocates

29 How to be an Effective Ambassador Communicate with your elected officials letter writing, social media, phone calls, attend town halls and tele-town halls, district office visits Continually update staff and tell your story! Arthritis is misunderstood, so forming relationships clarifies the issues

30 Telling Your Story Use our Advocacy Toolkit as a guide Be honest how is your life being affected by this particular policy? When x happens, what is the result for your family? Be memorable Be succinct

31 Any Questions? Please hit #6 to unmute your line

32 Reporting Your Activities The Reporting Center is important so AF staff know about interactions and where to follow up or target our advocacy efforts in Washington, DC and in the states Reporting is also important for Ambassador awards at the end of the year

33 Reporting Your Activities Advocate ID: Address Passcode: Last Name

34 Reporting Your Activities

35 Reporting Your Activities

36 Reporting Your Activities We recommend using Google Chrome or Firefox when reporting in Please be sure to hit completed or the activity will still be active If you cannot find the activity, be sure to scroll over at the bottom they may be on the last page Please contact Laura Keivel for any assistance

37 2015 Ambassador Briefing Schedule Wednesday, July 8 3:00 PM Eastern Wednesday, September 9 3:00 PM Eastern Wednesday, November 11 3:00 PM Eastern

38 Ambassador Awards The Ambassador year is October October Platinum Ambassadors complete all activities, raise $500 (give or get), and complete 4 bonus activities Honored at the annual Advocacy Summit

39 Questions? We are here to help! Any questions Any materials We are here to be a resource for you! lkeivel@arthritis.org or #6 to unmute your line

40 Thank You! YOU make a difference Thousands in Advocate Network 700 Ambassadors 1 Voice We advocate with the Arthritis Foundation because it is the only way our family can help get us closer to a cure Heidi Barrett, Washington State

41 Thank you for being a part of the Ambassador program!

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